In the last week or so, I've had some pretty significant good/bad swings. I'll have a good day, which generally means that I don't have terrible stomach pains or diarrhea (sorry we have to discuss such a subject, but it is what it is!) and I can eat pretty much what sounds/looks/or smells good. Lately, it's been SOUP!! I am constantly dreaming about warm, creamy, savory soup. (Cutler's Chicken & Wild Rice is my very favorite!) It could be that it's freezing--literally--outside and I just can't seem to stay warm. Soup satisfies my taste buds, my inner body temps, and my little tummy. But, just as I start to enjoy that good feeling, I'll wake up feeling like anything I eat--even my beloved soup--will just cause more distress...so I don't eat anything. I just sleep. I'm warm, I'm unaware of being hungry, and I don't roam too far from home. Last week, I had a "bad" day on Thursday. Didn't do a darned thing I had on my To Do list. Napped morning and afternoon. Went to bed early. Ate Saltine crackers and drank water. Blah. But, Friday, I had already planned on birthday shopping with my cute Janessa, so I pysched myself into having a "good" day--and it worked. I crossed things off the list, I cleaned the house a bit, and the two of us went to the mall after school and shopped. I got to have an Orange Julius and some dinner. Saturday, I took Janessa and four of her friends bowling at Fat Cats. We ate pizza. I surprised her with a fantastical "Sweet 16" cake and had a bite. Dean and I took her to Spaghetti Factory and I had spinach alfredo. It was a GOOD day. Sunday, not so much. Out came the crackers again. Made J's birthday dinner--meat loaf and garlic mashed potatoes--and had to "watch" her eat. Bad day. Up and down. This is the normal life with IPI, I guess.
Tomorrow is another infusion, the third. I get to visit with Dr. G. I wonder what he'll say about my groin tumor (is it shrinking or is that just my imagination and wild hope?). I wonder what he'll say about these good/bad swings. I can't wait to get some upbeat advice on how to handle it all because I know he'll have it to give me. And maybe I'll get to have soup for lunch?? We'll see.
I was thinking of taking a picture from the Infusion Center tomorrow to show you what I see when I'm there. If it's a good day, it will be on the blog. If not, well, we'll try again next time.
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